Pittsburgh 'Is What It Is'

People keep asking 'How was the trip to Pittsburgh?' Well that has lots of answers.

Overall the trip was good. We went out a day early so we could have fun with the kids and play. G and E had such fun this summer at a few of the Burgh's local cultural institutions, they wanted to show them to me. I have to say the Pitt Science Center is incredible. It is hands on, explains science in a way that children can understand it, and is physical. Kids get tired there....I was amazed. We also went to various local establishments and enjoyed some wonderful epicurean experiences.

One of the best times was having dinner with our friend Allyson and her husband - Kirk. We got to see where they live and just hang out. That was fun. Plus while Amy and I were meeting with the UPMC team, Allyson was able to take our children to the Children's Museum. According to the kids, it is way better than any other children's museum they have attended. It was wonderful to see their smiles when they returned from the day.

So GREAT!! is one answer. The other answer is 'Really....Come on. Are you serious?' That would be because my liver enzymes prefer to fluctuate rather than stay consistent. One week the billyrubin is 1.6; the next it is 2.3 and then back again. So what is one to do?

Well we did more fluid a few weeks ago. That worked initially, but now.....they are back up again. So the next step is to change medicine and do an MRE. That's fine. But getting it done is a pain because we have to fit it in and they couldn't do it at UPMC during a time that worked for us. So now we have to get it done here in West Michigan and then head back to UPMC for a check up, and figure out what is next.

Ah the joys of a chronic disease.

I know we will figure it out. But it sure can be a roller coaster without an ending.